Things NOT to say to the parent of a child with special needs:
1. "Well...I don't care what the doctors say--s/he is fine. There's nothing wrong."
(That's right, there IS nothing wrong. But there IS an issue. By denying it, you are making it very difficult for the parents and the child.)
2. "Well, if you want to see someone who is REALLY ______________ (insert SN here), I know someone..." (Yes, there is always someone with a more severe need, obviously. But for the parents, they are dealing with what their child/children has/have. Meet them and accept them.)
3. "Oh, I am SO ADD/OCD/Spectrum...or any list of issues." (It's not cool or funny to joke about having conditions that are real. Natan has Autism Spectrum Disorder, Dev. Delays and OCD--it makes his life slightly more difficult than the average person.
All this is to say that parents of kids with special needs deal with things differently. You have to. George has a heart defect that is not improving. It has changed the course his life would take if he did not have it.
Natan has Autism, OCD, and delays. Maybe they are milder than others, but they still exist and are a huge part of him. If we deny this, how would we handle him?? I am his Mom and Teacher--I see things that other people will not see. And yet people still tell us, "Oh, he's fine--look how much better he is." Yes, Natan has come a long way since coming home. But he doesn't have something that is curable. His delays in school are more pronounced than ever--I have changed, yet again, the methods I use and what I teach him. His doctor said that I should put people in their place. I think that is exactly what I will start doing--I have to, for his sake. I will not apologize anymore for his behavior. There is nothing wrong with him--he is a sweet and super lovable kid. But he has needs.
Tahitina...Jason and I have met her, held her, spent time with her. People are saying, "Oh, she'll be fine as soon as she gets home." No, she won't. She has been turned down by three families. Her needs are severe. We are not even sure where we will begin. We will do whatever we can, but we also know she may never walk or talk. Denying this is not helpful. Acceptance is the only way to move forward. Every success will be a joy. I am aiming for lots of those moments, but am also prepared for the alternative.
I never saw myself in this role: "Mother of Special Needs Kids"--it scared me, frankly. But, you have one and life changes. It makes it easier to accept more. It's never simple, but it becomes normal. Now I have three (yes, I include T since she is almost home!). You think you are doing what you are meant to do (school, jobs, etc. etc.!), and then you have these kids. NOW I know what I was meant to do!